Surviving a brain stem stroke
Ten years ago today 06.02.11 I had my stroke.
Ten years ago today I had my stroke, after all the bleak outcomes the medical world gave me and my family I'm still here and fighting fit, well sort of, here is to the nex 20 years.
My latest painting.
See my art page for further photos.
As the title suggests I am a stroke survivor not a stroke victim, this blog is a story of my journey since February 6th 2011 starting with an account of my time in hospital and of my time in Rehab then my on going recovery at home, it is intended to
encourage both stroke Survivors and Carers alike.
I was planning to write a book, however,there are many out there and as I don't wish to make any money out of my story which may prevent some from experiencing Gods Glory and healing powers I have chosen
this media as the format for showing the world what its like to be a survivor relying on the Blessings of God, family and for support.
My web name comes from my friends on the 'Different Strokes' face book they nick named me Bantam Eddie because of the
three young bantam chickens that have came into my life, sadley I had to give them up but, i kept my blog name.
I dedicate this story to my wife and family who loved and supported me though the most horrifying time of our life, to my friends who prayed
for us throughout my recovery and still do, to the medical staff and flight crew who worked effortlessly to save my life and to the rehab team for the work they did and are still dedicated to my recovery and to God who intervened and rescued me from death
itself and carried me through the trauma of recovering from a brain stem stroke.
I know that many Stroke Survivors, carers and loved ones were told or were warned by consultants and other professionals in the early days of stroke that “you may never walk, talk, swallow “etc. these days I've come to
understand why, if we were told that we will fully recover when knowing that we wouldn't would be foolish and dishonest of the practitioners.
I like many others was given a bleak outlook for my future and to be prepared for a life with disabilities
which caused me to be very sad and down for a short while, eventually I began to accept my stroke and the disabilities it has left me with, however, I could not and would not accept the prognosis.
Let me try to encourage you by saying there is a new
world out there to discover, though I cannot drive any more and my walking is ver poor I see and visit more places than I would have if I driving. over the past four years I've climbed my mountain, carried the Olympic torch, flown back to Australia, I independently
travel in my Power chair on busses and trains, stay in hotels, visited many places in the Uk i.e. London, Newmarket, Stratford on my own. Next week I'm going to Northumberland for a respite week again on my own.
Life doesn't need to be just an existence
it's an exploration there are so many things out there that can give you something to live for and enjoy.
Try not to allow yourself to get stuck in in that “I’ll never be able to do that again” mode, it isn’t an easy journey
but the World is your Oyster so get out there and explore it.
'Different Strokes' Supporting younger Stroke Survivors UK.
Nearly 10yrs ago I was discharged from a month stint in hospital, my daughter was researching stroke support groups, after finding one particular groups DS she and my family encouraged me to look at 'Different Strokes' which I did. Today I am the DS volunteer coordinator for Norwich.
Different Strokes face book has kept me sane over the years by receiving and giving peer support to many lovely survivors.
Please look at their page it could help you to find support for either yourself, partner, parent or you may know someone of working age.
My very first ride on a horse,ever you can tell its not going to by favourite activity.
Further photos and thoughts on Eddies the dare devil page.
A ride on the wild side, THERE IS LIFE AFTER STROKE, ITS DIFFERENT, BUT, ITS GOOD.
NEW PAGES - 'EDDIES INDEPENDENT TRAVELS 'AND 'EDDIE THE DARE DEVIL'
25. Jan, 2017
EDDIES INDEPENDENT TRAVEL
I am aware that some power or manual chair users have needs that affect their ability to travel alone, however I hope to show carers and loved ones that all the places that are accessible to me will be accessible to you as an escort.
This page is about my journeys in my power chair or scooter. I often hear that getting about in a power chair can be difficult, some times it is depending where you are i.e. town, city, country side or country.
Again this section is pictorial and shows that someone in a chair can travel where ever they like.
Rockingham beach WA
You can see our latest Trip to Australia where I took my own power chair Eddies independent travel.
SEPTEMBER 2014 at the base of Canigou, South France.
One of the best days of my life, for years now I have wanted to climb Canigou in the South of France, as you know my stroke has put pay to this kind of extreme climbing, however, I managed to get to the base in what can be still described as extreme. Watch this.
I feel rather pleased with myself, I've just cut the grass with only three rest pauses and I didn't drag my chair behind me.
I am sitting here in the conservatory enjoying the sun shine and blue sky's yes blue sky's the storm has passed, but, while thinking it came back to me the memories of lying there unable to move the seconds, minutes, hours, days months yes months six
in all, having my bum cleaned by young ladies, unable to eat, drink, talk, couldn't ring the bell when in pain, staff talking over you when cleaning you, staff not taking the time to learn to use the ETRAN communication board, being hoisted, rolled, meds stuck
up your bum, blood taken daily and from anywhere they could find a vein etc. but like I said I am now sitting enjoying the sun and life in general waiting to go to McDonalds with grand daughter.</p></p>
Every mans Tonka toy dream.
From being told that I may never walk, talk, swallow etc again, here I am fulfilling a dream in Australia with my grandchildren.
Sitting in the drivers seat of the truck
Make your own website like I did.
It's easy, and absolutely free.